Ms Jenny Preston BA (Hons) Sociology/Women’s Studies
Office telephone: +44 (0) 151 252 5435
Email address: Jennifer.firstname.lastname@example.org
ORCID iD: https://orcid.org/0000-0003-4800-234X
Twitter: @Jen_Preston1 @YouthInclusions
Facebook: Jenny Preston
HIGHER EDUCATION AND ACADEMIC QUALIFICATIONS
2020-Present: PhD student – Child Health, University of Liverpool
1999-2003: BA Honours Degree (2:1) – Sociology/Women’s Studies, Liverpool John Moore’s University.
1997-1999: Access Course (Distinction), Liverpool Hope University
COURSES AND TRAINING
- Approaches and Methods in Clinical Research
- Aurora Leadership Programme
- Chairing Skills Training
- Communication and Consent in Paediatric Research (Foundation)
- Good Clinical Practice (GCP) + EU Directive for Paediatric Research Staff
- Get Yourself Published
- Good Clinical Practice (GCP)
- Improving Healthcare Through Health Clinical Research
- Paediatric Research: Understanding Policy, Quality, Achieving Quality
- Qualitative Research Methods
2018 – Present: Senior Patient and Public Involvement Lead, University of Liverpool
Key Projects I am currently working on:
- PPIE Manager for the NIHR Alder Hey Clinical Research Facility (CRF)
- Co-Founder of a European Young Person’s Advisory Group Network (eYPAGnet)
- PPIE Executive Lead for NIHR CYPMedTech, Sheffield University
- Co-investigator on several NIHR funded research grants
2018 – Present: Managing Director, Youth Inclusions Limited
2019 – Present: Trustee, Raising Awareness of Invisible illness in Schools and Education
2005 – 2018: Patient and Public Involvement and Engagement Priority Lead, NIHR Clinical Research Network Coordinating Centre
2012 – Present: Senior Patient and Public Involvement Manager – NIHR Alder Hey Clinical Research Facility (CRF)
Responsible for the management and involvement of young people and families in the development of paediatric health research. Passionate for raising the profile of paediatric research both in the UK and Internationally.
2004 – 2005: Lone Parent Project Manager – Education Youth Service (EYS)
2004 – 2004: Executive Officer – Department for Work and Pensions (DWP)
Brady, L.-M. and Preston, J. (2020) ‘How do we know what works? Evaluating data on the extent and impact of young people’s involvement in English health research’. Research for All, 4 (2), 194–206. Online. https://doi.org/10.14324/RFA.04.2.05
Bhoombla, N., Preston, J., Ainsworth, J. et al. Pharmacovigilance Reports Received from Children and Young People, and Development of Information to Aid Future Reporting from this Age Group. Pediatr Drugs 22, 335–341 (2020). https://doi.org/10.1007/s40272-020-00391-6
Tume LN, Woolfall K, Arch B, Roper L, Deja E, Jones AP, et al. Routine gastric residual volume measurement to guide enteral feeding in mechanically ventilated infants and children: the GASTRIC feasibility study. Health Technol Assess 2020;24(23)
Preston., J, Chan., W, Thurairajah., P, Butcher., N, et al. Guidance on development and operation of Young Persons’ Advisory Groups. Archives of Disease in Childhood Published Online First: 24 March 2020. doi: 10.1136/archdischild-2019-318517
Sheridan, R., Preston, J., Stones, S., Ainsworth, S., Taylor, D.H., Challinor, R., Ainsworth, S., Martin-Kerry, J., Brady, L.-M. and Knapp, P. (2020) ‘Patient and public involvement in a study of multimedia clinical trial information for children, young people and families’. Research for All, 4 (1): 47–65. DOI https://doi.org/10.18546/RFA.04.1.05
Preston., J, Bagley., H, Challinor., R, Stones,.S. (2019). Research together: the value of patient and family involvement in Prescribing medicines for children: from drug development to practical administration. Pharmaceutical Press.
Davies, H.T., Philips, B., Preston, J. & Stones, S.R.(2019). Making research central to good paediatric practice. Archives of Disease in Childhood 104(4): 385-388. Doi: 10.1136/archdischild-2018-315117.
Preston, J., Stones, S.R., Davies, H. & Philips, B. (2019). How to involve children and young people in what is, after all, their research. Archives of Disease in Childhood 104(5): 494-500. Doi: 10.1136/archdischild-2018-315118.
Phillips, B., Davies, H.T., Preston, J. & Stones, S.R.(2019). Framework to help design and review research involving children. Archives of Disease in Childhood 104(6): 601-604. Doi: 10.1136/archdischild-2018-315119
Davies, H.T, Phillips, B., Preston, J. & Stones, S.R. (2019). How to navigate the ethical review of research. Archives of Disease in Childhood 104(7): 697-700. Doi: 10.1136/archdischild-2018-315120.
Vivian W. L. Tsang, Leanne West, Christine Woods, Chester J. Koh, Susan McCune, Theresa Mullin, Sharon R. Smith, Segolene Gaillard, Joana Claverol, Begonya Nafria, Jennifer Preston, Pamela Dicks, and Charles Thompson. Role of Patients and Parents in Pediatric Drug Development. Therapeutic Innovation & Regulatory Science 2019. https://journals.sagepub.com/doi/10.1177/2168479018820875
Jacqueline Martin-Kerry, Peter Knapp, Karl Atkin, Peter Bower, Ian Watt, Catherine Stones, Stevin Higgins, Rebecca Sheridan, Jenny Preston, Danielle Horton Taylor, Bridget Young. Supporting children and young people when making decisions about joining clinical trials: qualitative study to inform multimedia website development. BMJ Open 2019 http://dx.doi.org/10.1136/bmjopen-2018-023984
Gaillard, S. Malik, S. Preston, J. Escalera, B. N. Dicks, P. Touil, N. Mardirossian, S. Claverol-Torres, J. Kassai, B. (2018) Involving children and young people in clinical research through the forum of a European Young Persons’ Advisory Group: needs and challenges. Fundam Clin Pharmacol. doi: 10.1111/fcp.12360
Preston J., Dicks, P., Escalera, B. N., Gaillard, S. (2018) The ethical principles underpinning the participation of young people in the development of paediatric clinical research, in Ethics of Research Involving Minors: A European Perspective. Medcial Ethics Vol 29. http://www.lit-verlag.de/isbn/3-643-90975-6
Jacqueline Martin-Kerry, BAppSci (Hons) PhD, Peter Bower, Bridget Young, Jonathan Graffy, Rebecca Sheridan, Ian Watt, Paul Baines, Catherine Stones, Jenny Preston; Steven Higgins, Carrol Gamble, Peter Knapp: Developing and evaluating multimedia information resources to improve engagement of children, adolescents and their parents with trials (TRECA study): Study Protocol for a series of linked randomised controlled trials. Trials. 10.1186/s13063-017-1962-z
Emma Thomas-Jones, Amy Lloyd, Damian Roland, Gerri Sefton, Lyvonne Tume, Kerry Hood, Chao Huang, Dawn Edwards, Alison Oliver, Richard Skone, David Lacy, Ian Sinha, Jenny Preston, Brendan Mason, Nina Jacob, Robert Trubey, Heather Strange, Yvonne Moriarty, Aimee Grant, Davina Allen & Colin Powell. A prospective, mixed-methods, before and after study to identify the evidence base for the core components of an effective Paediatric Early Warning System and the development of an implementation package containing those core recommendations for use in the UK: Paediatric early warning system – utilisation and mortality avoidance– the PUMA study protocol. BMC Pediatr 18, 244 (2018). https://doi.org/10.1186/s12887-018-1210-z
Danielle Yuill, Rachel Barron, Jennifer Preston. Lay writing: Strategies for improving assent forms for children and adolescent participation in health research. (2018) Vol 27, Issue 1, Vaccines and Immunotherapies.
Hannah Lythgoe, Victoria Price, Vanessa Poustie, Sabah Attar, Daniel Hawcutt, Jenny Preston, Michael W Beresford. NIHR Clinical Research Networks: What they do and how they help paediatric research. http://adc.bmj.com/content/early/2017/01/17/archdischild-2016-311057.short
Bate ., J, Ranasingh ., N, Ling ., R, Preston ., J, Nightingale .,R, Denegri., S. Research in Practice: Public and patient involvement in paediatric research. January 2016. Arch Dis Child Educ Pract Ed doi:10.1136/archdischild-2015-309500.
Irwin AD, Grant A, Williams R, Kolamunnage-Dona R, Drew RJ, Paulus S, Jeffers G, Williams K, Breen R, Preston J, Appelbe D, Chesters C, Newland P, Marzouk O, McNamara PS, Diggle PJ, Carrol ED. Predicting Risk of Serious Bacterial Infections in Febrile Children in the Emergency Department. http://pediatrics.aappublications.org/content/early/2017/07/04/peds.2016-2853
Pirkko Lepola, Susan Tansey, Pamela Dicks, Jennifer Preston, Martine Dehlinger-KremerPharmaceutical Industry and Pediatric Clinical Trial Networks in Europe – How Do They Communicate? Applied Clinical Trials (January 2016). http://www.appliedclinicaltrialsonline.com/pharmaceutical-industry-and-pediatric-clinical-trial-networks-europe-how-do-they-communicate
Tume., L, Preston., J, Bronagh., B. “Parents’ and young people’s involvement in designing a trial of ventilator weaning”. Nursing in Critical Care. September 2015. DOI: 10.1111/nicc.12221
Gamble C, Dudley L, Allam A, Bell P, Buck D, Goodare H, Preston J. et al. An evidence base to optimise methods for involving patient and public contributors in clinical trials: a mixed-methods study. Health Serv Deliv Res 2015;3(39)
Thompson ., H, Frederico ., N, Smith ., SR, Chowdhury ., M, Dicks ., P, Preston ., J, Thompson ., C. iCAN: Providing a Voice for Children and Families in Pediatric Research. DIA Therapeutic Innovation and Regulatory Science Journal. 2015, Vol. 49(5) 673-679 http://dij.sagepub.com/content/49/5/673.full.pdf+html
Dudley., L, Gamble., C, Allam., A, Bell., P, Buck., D, Goodare., H, Hanley., B, Preston., J, Walker., A, Williamson., P, Young., B. A little more conversation please? Qualitative study of researchers’ and patients’ interview accounts of training for patient and public involvement in clinical trials http://www.trialsjournal.com/content/16/1/190
Buck., D, Gamble., C, Dudley., L, Preston., Hanley., B, Williamson., PR, Young., B, The EPIC Patient Advisory Group. From plans to actions in patient and public involvement: qualitative study of documented plans and the accounts of researchers and patients sampled from a cohort of clinical trials. BMJ Open 2014; 4e006400. doi:10.1136/bmjopen-2014-006400.
Modi., N, Vohra., J, Preston., J, Elliott., C, Van’t Hoff., W, Coad., J, Gibson., F, Partridge., L, Brierley., J, Larcher., V, Greenough., A for a Working Party of the Royal College of Paediatrics and Child Health. Guidance on clinical research involving infants, children and young people: an update for researchers and research ethics committees. (2014) Archives of Disease in Childhood, Vol 99 No 10.
Gamble., C, Dudley., L, Allam., A, Bell., P, Goodare., H, Hanley., B, Preston., J, Walker., A, Williamson., PR, Young,. Y. Patient and public involvement in the early stages of clinical trial development: a systematic cohort investigation. BMJ Open (2014).
Preston., J, Van’t Hoff., W, Semple., G, Challinor., R. Young People’s Voices Improving Research. Pharmaceutical Physician, Vol 25 issue 5.
Snape, D., Kirkham, J., Preston, J., Popay, J., Britten, N., Collins, M., Froggatt, K., Gibson, A., Lobban, F., Wyatt, K., Jacoby, A,. (2013) Exploring areas of consensus and conflict around values underpinning public involvement in health and social care research: Exploring areas of consensus and conflict around values underpinning public involvement in health and social care research: A modified Delphi Study. BMJ Open (2013).
Newman, J., Callens, C., Tibbins, C., Madge, N. (2012). Medicines for Children: reflecting on how young people improve research in this area. The Active Involvement of Children and Young People in Health and Social Care Research. Routledge.
Caldwell, P., Dans, L., De Vries, M., Newman, J., Offringa, M., Sammons, H., Spriggs, M., Tamble, P., Van’t Hoff, W., Woolfall, K., Young, B,. (2012) Ethical dilemmas in research with children: consent and recruitment. Pediatrics 2012; 129
GRANT APPLICATIONS – PRINCIPLE INVESTIGATOR
Raising Antibiotic Awareness through Drama in Children and Young People (Rapsody) – Knowledge Exchange & Impact, and Public Engagement. University of Liverpool – Current
GRANT APPLICATIONS – CO-INVESTIGATOR
Forearm fracture Recovery in Children (FORCE) NIHR HTA – Current
Surgery or Cast for Injuries of the EpicoNdyle in Children’s Elbows (SCIENCE) NIHR HTA – Current
Low-dose atropine eye drops to reduce progression of myopia in children (CHAMP) (NIHR Efficacy and Mechanism Evaluation Programme –Current
Biomarker-guided duration of Antibiotic Treatment in Children Hospitalised with confirmed or suspected bacterial infection (The BATCH Trial) – Current
Dynamic Electronic Tracking and Escalation to reduce Critical Care Transfers (The DETECT study) NIHR i4i – Current
Gastric residual volume measurement in mechanically ventilated infants and children, NIHR HTA –Current
The TRECA study: TRials Engagement in Children and Adolescents (NIHR HS&DR 14/21/21) – Current
PUMA: Paediatric early warning system (PEWS). Co-investigator. NIHR Health Services & Delivery Research (HS&DR)-Current
Metfizz. Co-investigator. Seventh Framework Programme (FP7)
EPIC: An evidence base to optimise methods for involving patients and public representatives in clinical trials. Co-investigator. NIHR HS&DR/INVOLVE
What are the impacts of user involvement in health and social care research and how can they be measured/assessed? Co-investigator. Medical Research Council
Development of a rapid salivary test to detect serious bacterial infection in children presenting to the accident and emergency department (Distinctive). Co-investigator. NIHR Central Commissioning Facility
Diagnostic comparison of procalcitonin and the aPTT biphasic waveform in children. Co-investigator. NIHR biomedical research centre for infection matched by Imagine